Forward

“In three words I can sum up everything I’ve learned about life: it goes on.”

~ Robert Frost

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LymeLife

Lyme life used to mean endless pain, countless needles and long late night trips to the ER. Medicine can save your life, but it can also kill you. Doctors told me thousands of times that I was crazy, that what I was treating for didn’t exist. That a good dose of prozac and a therapist would solve all my problems. Medicine can save your life, but only if you are willing to try anything.

Living with lyme & having a life…. This summer I have been better than I’ve been in a long time. I still struggle with a minor symptoms every few weeks but I can function and I have a life. I’m leaving for college in 2 weeks and I couldn’t be more excited. Lyme life doesn’t last forever <3

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The most informative & honest piece about Chronic Lyme on a major TV network. Amazed & happy to see: http://video.foxnews.com/v/2584466440001/living-with-lyme-disease/?playlist_id=930909749001

 

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Interpret these times…

“People who have not been in Narnia sometimes think that a thing cannot be good and terrible at the same time.”

~ C.S. Lewis

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11 months later…

11 months on antibiotics and I’m finally done with them! Well, for now at least…. I don’t know if treatment ever REALLY ends with lyme disease. I have been off antibiotics for two weeks now and am loving it. I am still taking 8ish supplements everyday and homeopathic drops to continue to fight lyme but all of that is natural. I wish I could say that I am in remission or that I am cured but honestly, no one really truly knows.

Right now I think the biggest thing bugging me is allergies which have been super bad but at least that has nothing to do with lyme. The infrared sauna has been such a life saver with everything lyme, allergies and colds. I really think everyone should own one. If I feel a herx coming on or my allergies get bad I can take a sauna and feel so much better after. I love it.

I’m off to enjoy the sun while I can (it’s been cold here). Don’t forget to smile. 

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Undeniable

“The answer is that there is no good answer. So as parents, as doctors, as judges, and as a society, we fumble through and make decisions that allow us to sleep at night–because morals are more important than ethics, and love is more important than law.”

~ Jodi Picoult

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Having a good day

“…. I did not know I could ever feel what I have felt, he thought. Nor that this could happen to me. I would like to have it for my whole life. You will, the other part of him said. You will. You have it now and that is all your whole life is; Now. There is nothing else than now. There is neither yesterday, certainly nor is there any tomorrow. How old must you be before you know that? There is only now, and if now is only two days, then two days is your life and everything in it will be in proportion. And if you stop complaining and asking for what you never will get, you will have a good life. A good life is not measured by any biblical spam.”

~ Hemingway, ‘For whom  the Bell Trolls’

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I’m Back

Sorry.

It’s been about a month and a half since my last post. I’d like to say its because I’ve been super healthy and really really busy with my exciting busy life but its kinda the opposite. I’ve been feeling better and having more better days but I’ve just been in a sort of “brain fog” for awhile. It’s hard to explain. Really, I think I just ran out of things to say (never thought I’d say that). I am going to try to keep this updated more, especially since I will be changing my meds up soon.

Anyway, I am meeting with my doctor in two weeks to change up my meds. I’ve been on these current meds for 4 months and they were helping a lot at the begging but I have started to plato and its time to change things up again. As far as how I have been feeling…. depends on the hour most days. I either have good mornings or good evenings but rarely both. Trying to find the right medication for me is actually a lot harder than people think. No one is the same with lyme disease so everything I try feels like I’m a test subject in an experiment. But it’s getting better or at least it’s not worse. My main issues right now are spinal pain in my mid back and headaches. Almost everything else has kinda worked itself out but unfortunately the spine and headaches are still pretty depilating (especially together). I’m pretty upset that its already mid May and I’ve been at this since August and I am still feeling significantly shitty. All I want in the entire world is to be able to last an entire day shopping or go out with my friends and not have to leave early. Really tho I just want to be able to go to college in the fall and be a real person…. thats all I want.

Oh!! May is Lyme Awareness Month! I could go on and on endlessly about how this disease has affected my life. And occasionally I do, but that’s not the message I wish to impact today. Today I’d just like you to be mindful, be informed and be aware. Early detection and preferably prevention is key to diagnosing and recovering from this disease. Average diagnosing time for lyme is 8 + years! Knowledge is power and right now we are lacking. Wear green and spread awareness for the rest of the month. With that being said, cheers to health, to those who have it, and extra to those who are fighting for it.

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